We went to see the Nephrologist on Thursday. Gavin's bp was higher than it should be, so the doctor wants him to start taking a bp med. Because high blood pressure can cause multiple problems, she wants us to get an ECHO of Gavin's heart to see if the left ventricle might have thickened. She wants to make sure we keep checking his eyes since hypertension can affect the eyes. The doctor said she wants him to have another renal ultrasound in a few months, so we can compare it to this last year. We'll have to keep checking his kidneys as he grows, since we don't know how much, if any, they will grow. Right now, the largest of his kidneys is only in the 25 percentile for his height, which probably means they're not working as efficiently as they should. But as he grows, one or both kidneys could keep growing, increasing their efficiency. We just don't know yet.
They took blood to check multiple things like electrolytes, so after it comes back, we can check with a renal dietician to see if she wants us to put Gavin on any special diet or anything.
We saw the Endocrine doctor today. She said some of the blood-work was endocrine related, so wants to see what that shows before thinking about giving Gavin growth hormone shots. She wants him to have a bone age x-ray before we see her again. She also noticed that his thyroid labs weren't quite right. His TSH was high, so she is starting him on a low-dose thyroid medicine to see if that makes a difference.
She also said that sometimes when he doesn't seem to want to eat, it may be from ketosis,so we should give him some juice or something and see if that makes him hungry afterwards.
WHEW! So many things going on right now! I'll have to write about other stuff later.
